Originally posted on RedSoxLife  |  Last updated 5/19/13
The 24th Annual Phestival to fight ALS My uncle Mark was very close to my family. He was one of my dad's nine siblings, he lived nearby, and he had two sons that were close to my age. When he was diagnosed with ALS, it shocked my family. Only ever hearing about ALS as Lou Gehrig's Disease, I had never spent any time researching or thinking about ALS until my uncle had it. Amyotrophic lateral sclerosis (ALS), is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Amyotrophic comes from the Greek language. "A" means no or negative. "Myo" refers to muscle, and "Trophic" means nourishment. When a muscle has no nourishment, it "atrophies" or wastes away. When we read about ALS, we were learning that Mark was going to waste away and eventually become paralyzed, and because there is no cure, we also learned that the diagnosis for all ALS patients is eventual death. Knowing we couldn't do much to physically help Mark, our family came together ...
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